Thursday, 5 May 2016

Our journey begins....

Today I signed the form for school to refer Riley to PCAMHS (Primary Child and Adolescent Mental Health Services) for further assessment. 

It feels like a mixture of emotions to see someone else write .....'shows significant signs of ASD' (autism spectrum disorder) about your child if I'm totally honest. I think even though I know what's in front of me I still have had that little bit of denial in me and I think I will until someone actually confirms autism with a proper written diagnosis. 

Richard Brooks who attended the last meeting at school is pretty experienced in autism and he said ....' It's fairly obvious Riley has autism' and that felt weird to hear. I still feel like I'm imagining it or making it out worse than it is and I think this is partly because a lot of people have reassured me about Riley's traits and features in the past, which I know they were doing to support and help and reassure me but I'm sure this has made me lack my own parenting instincts if I'm totally honest. 

Even though we have been 'in the system' and supported by various professionals, from play workers to speech therapists, since Riley was first referred to a paediatrician aged 2, I feel today marks the start of our diagnosis journey which I'm expecting to be a fairly long one, months if not years but we are finally on the road to getting Riley the support he needs and deserves to grow and develop to his full potential.

Apparently the wait for the first (of many) appointment is up to 18 weeks though they do tend to acknowledge the referral fairly quickly.

So today has been pretty significant and a bit of a reality check for me so trying to get my head around it all, need to get the kids in bed and open some wine and relax in the bath I think :) 

13 comments:

  1. You shouldn't question your own parenting skills - I hope this is the start of an onward and positive journey, where Riley will get the help he needs, not only from you, but from others who will be so experienced in this area. Wish you all well.

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  2. I worked in a school last year and had a child in class who was also on the ASD spectrum. Once they started to see someone, the confidence they gained was amazing. Good luck with it all, and like Sarah, I don't think you should question your parenting skills either! (:

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  3. Enjoy that relaz and wine! It must be a stressful time just not knowing but at least the journey has started and you will be on your way to getting help and support for Riley. Just take one day at a time (hugs) xx

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  4. None of us get an instruction manual in the labour ward and so we learn on the job. There's nothing wrong with your parenting instincts, you are just learning about your son's needs on the job! I hope that you an Riley get the support you need.

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  5. I think you will still know your son more than any professional but I guess if it means he gets more support and help its a positive step x

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  6. It is horrible, but I can hold your hand. We too are going through this. I out it off for a long time (mini is nearly 10) we have always know that he has ASD and I never wanted him labeled, but we need additional help and the only way to get it is via CAHMS. Our assessments have been ongoing for nearly 8 months thanks to 3 changes of key worker!

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  7. It's more common than you think my eldest is high functioning aspergers and knowing this helps us understand and change the way we interact with her. Don't question your own parenting just be solid in your understanding and love xxx

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  8. It's one of those processes that is both difficult and a relief at the same time. It's no use blaming your parenting, but it's no use burying your head in the sand either. With a diagnosis, whatever the outcome, Riley will get any extra help that's needed and trust me when I say it will be for the best in the end. Good luck on your journey, it's not an easy one xx

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  9. It sounds like you're at the start of a long, but very worthwhile journey. Any diagnosis will result in help for you all and I bet Riley will really benefit from it all x

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  10. Good luck on your journey - I hope the diagnosis is the beginning of getting the right support in place so Riley has the best chance of being happy and fulfilled!

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  11. Sounds like you are heading in the right direction to get the support you need, good luck x

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  12. Good luck! I think having as many answers as possible can only help get you both the right support. I hope it all goes well and the appointments come quickly.

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  13. I know this can indeed be a long journey so wishing you both the best on your path, hopefully not too long a path. Love, Liska x

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